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Vermont is trying to survey underrepresented communities about their health. It can get complicated

A photo of a blue medical exam chair in a wood-floored room, next to a bookshelf and a poster with multicolored post-it notes and gold letters spelling: "What does inclusion mean to you?"
Elodie Reed
/
Vermont Public File
The room where patients are seen at All Brains Belong, a community health organization in Montpelier that is run by and for neurodivergent people. Statewide health survey data show that Vermonters with disabilities, LGBTQ+ Vermonters and BIPOC Vermonters are all more likely to delay getting care due to cost.

The Vermont Department of Health has tried something new while gathering health data for adults across the state: special outreach to people who identify as Black, Indigenous or people of color, or BIPOC.

That鈥檚 part of the to more accurately understand the health needs of Vermont鈥檚 entire population. BIPOC communities, for example, are often underrepresented in datasets.

And while the health department said its extra outreach, called an 鈥渙versample,鈥 was successful in recruiting more survey responses from BIPOC Vermonters, it鈥檚 not without complication.

The department doesn鈥檛 plan to do this oversampling again in the future, in part because of recent federal funding cuts. And specifically for Vermont鈥檚 Indigenous population, there are nuances of belonging 鈥 and recognition 鈥 that are difficult to navigate.

The oversample

The Health Department performed its oversample as part of the Behavioral Risk Factor Health Surveillance System 鈥 an annual survey that uses randomly selected telephone numbers.

For the phone numbers that belonged to BIPOC Vermonters, those people received a letter ahead of time, answered an online version of the survey, and received a $10 gift card in return.

According to the department, this added more than 300 extra survey responses from BIPOC Vermonters. Those are reflected in the . It summarizes data from 2023, collected from over 9,000 respondents.

鈥淭hat oversample gives us a much, much better picture and more actionable data,鈥 said interim Health Commissioner Julie Arel this week.

A photo of a man with brown skin wearing a brimmed hat, a light blue suit and a scarf. He's looking at a framed type-written page on the wall.
Elodie Reed
/
Vermont Public File
Rev. Co'Relous Bryant views the "Beneath Our Skin" exhibit at Clemmons Family Farm on Monday, April 8, 2024. The project examined vaccine access and uptake for Vermonters who identified as Black or of African descent.

While the latest survey data shows most of the Vermont adult population reporting good health, .

Overall, 8% of Vermonters said they didn鈥檛 get medical care because of cost in the prior year, and people with less education or lower income, BIPOC adults, LGBTQ+ adults and people with a disability were more likely to delay care. Those same populations were also more likely to report their community was not safe for walking.

Adults with disabilities were five times more likely than adults without disabilities to experience physical symptoms like headache, upset stomach, tensing muscles or a pounding heart due to how someone treated them based on race. And BIPOC adults were four times more likely than white, non-Hispanic adults to experience these symptoms.

鈥淚t鈥檚 when we start to dig in 鈥 and see where the disparities are 鈥 that it shows where we really need to do more work,鈥 Arel said.

That work, however, is not likely to include more oversamples. According to the Health Department, this is for a couple reasons. For one, the federal government just took back .

The other reason the department said it won鈥檛 do more oversamples is that BIPOC Vermonters make up about 10% of the state鈥檚 adults, and run the risk of being over-surveyed.

Indigenous communities in Vermont

Indigenous Vermonters are a population the . indicates some significant disparities for the state鈥檚 American Indian or Alaska Native population, based on 2021 and 2022 survey data.

(Nationwide, Indigenous peoples face barriers to health

The Vermont Commission on Native American Affairs recently examined the numbers.

鈥淚 found it to be somewhat startling,鈥 said commission Administrative Director Breanna Sheehan at a meeting in March.

She presented a slide that showed higher rates of cancer among the American Indian or Alaska Native population 鈥 33%, compared to 21% for Vermont overall.

Other slides showed American Indian or Alaska Native adults and youth had a higher likelihood of disability; nearly half of youth respondents reported poor mental health most or all of the time; and a comparatively large percentage of adults had cardiovascular disease.

Sheehan also noted that the survey relied on people self-identifying as American Indian or Alaska Native.

鈥淜eep in mind, folks, that means it鈥檚 going to be undercounted,鈥 said Commissioner Jeff Benay.

It鈥檚 common for Indigenous peoples 鈥 particularly those living on reservations 鈥 to be undercounted in datasets , which also relies on self-reporting.

A photo of two men with their arms around each other.
Elodie Reed
/
Vermont Public File
Jeff Benay, left, pictured at the June 2023 Vermont Commission on Native American Affairs Meeting. Here he's receiving the commission's 2023 "Community Service Award" for his decades of work with the groups that would go on to become today's state-recognized tribes, particularly the Abenaki Nation of Missisquoi.

However, points out a different concern with research relying on self-identification: People can claim to belong to an Indigenous nation when they in fact do not.

鈥淭he data collection becomes precarious because there can be a mix of genuine and inauthentic individuals participating in the research studies,鈥 the paper reads. 鈥淲e cannot build accurate or effective models for action or change if they are based on fabrication, distortion, or misrepresentation.鈥

For years, , saying the groups have failed to provide adequate evidence of Abenaki ancestry and kinship ties.

State-recognized tribes have continued to deny these claims, saying they are and that they have provided proof of their Abenaki descendancy and connection, .

There is no way to confirm 鈥 the survey doesn鈥檛 require tribal affiliation for respondents.

The Health Department has begun as it tries to understand the needs of Indigenous Vermonters.

Song Nguyen, the department鈥檚 director of health equity, said she was aware of the dispute between the Abenaki First Nations and the Vermont state-recognized tribes, and called it 鈥渞eally challenging and very complex.鈥

鈥淎t the end of the day, we trust that individuals that are providing us with information are who they say they are,鈥 she said.

A photo of four people, two in colorful ribbon skirts with belts and t-shirts, and two in button down shirts and pants, stand together inside. They're all smiling, and the two people in the ribbon skirts are posing with one arm on their waists while the two people in pants and shirts are clapping.
Elodie Reed
/
Vermont Public File
Indigenous students at Dartmouth College prepare for a fashion show in the fall of 2024. The college has a council of Indigenous students, faculty, staff and alumni living in Vermont and New Hampshire.

Vermont Public reached out to leaders of local Indigenous communities 鈥 outside of state-recognized tribes the department 鈥 including at the University of Vermont and Dartmouth College, as well as Odanak First Nation, which has 16 Abenaki citizens living in the state.

None of them had been in contact with the Health Department, though most expressed an interest in hearing from state officials.

鈥淚 would definitely appreciate outreach,鈥 said Adria Brown. She鈥檚 the director of the Native American Program at Dartmouth and that includes Indigenous faculty, staff and graduate students who live in both Vermont and New Hampshire. 鈥淚 would generally speak to the need for culturally-informed care, training and treatment in particular.鈥

Nguyen, the director of health equity for the Health Department, welcomed anyone to get in touch with her.

鈥淎t the end of the day, we really, truly want to do our best to serve communities across the state,鈥 she said. 鈥淪pecifically, those that are disproportionately impacted by health disparities.鈥

Lexi Krupp contributed reporting to this story.

Elodie is a reporter and producer for Vermont Public. She previously worked as a multimedia journalist at the Concord Monitor, the St. Albans Messenger and the Monadnock Ledger-Transcript. Email Elodie.

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SOMOS CONNECTICUT is an initiative from 海角换妻, the state鈥檚 local NPR and PBS station, to elevate Latino stories and expand programming that uplifts and informs our Latino communities. Visit CTPublic.org/latino for more stories and resources. For updates, sign up for the SOMOS CONNECTICUT newsletter at ctpublic.org/newsletters.

SOMOS CONNECTICUT es una iniciativa de 海角换妻, la emisora local de NPR y PBS del estado, que busca elevar nuestras historias latinas y expandir programaci贸n que alza y informa nuestras comunidades latinas locales. Visita CTPublic.org/latino para m谩s reportajes y recursos. Para noticias, suscr铆base a nuestro bolet铆n informativo en ctpublic.org/newsletters.

Fund the Facts

You just read trusted, local journalism that鈥檚 free for everyone, thanks to donors like you.

If that matters to you, now is the time to give. Join the 50,000+ members powering honest reporting and a more connected 鈥 and civil! 鈥 海角换妻.

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